Mallorca Group

1. PTEN-study
Principal investigator: Hans Vasen
This study is aim to collect clinical information's on patients with a PTEN-mutation. Please complete the questionnaire and send to Hans Vasen: Download questionnaire.

2. Ongoing QoL (Quality of Life) study in Lynch syndrome patients after segmental versus extended colectomy due to colorectal cancer.
This study is still open for interested parties!
Principal investigators: Gabriela Möslein, Claudia Schneider
Participating countries to date : Netherlands, France, Germany, New Zeeland, collaboration with the NIH - CFR (cancer family registries) intended.
In this study validated questionnaires are sent to Lynch syndrome patients after resection of a colorectal cancer to evaluate the difference in the outcome of segmental versus subtotal colectomy.

The questionnaires are available in many languages, click here to download in your preferred language. Download questionnaire (english version)

Hypothesis: subtotal colectomy group with

• faciliated surveillance
• lower metachronous colorectal ancer risk
• inferior functional outcome

Inclusion criteria:

• Colorectal resection due to colorectal cancer
• At least 6 months post surgical intervention
• Fulfilling Amsterdam Criteria and/or
• mismatch repair deficient tumour

3. Ongoing data evaluation study regarding FAP patients and desmoids.
This questionnaire may be completed by the center and does not require patient contact. So far we have received the German and the Dutch data. The study is aimed towards assessing the value of laparoscopic surgery as a potentially less aggressive preocedure leading to a smaller number of postoperative desmoid tumours.
We are grateful for interest from other centers before publishing the data!

Download quesstionnaire (DOC)
Download study protocol (DOC)